Chronic Nausea / digestive issues / "unexplained medical issues"

[jennyjenny]

Hi everyone!

I am wondering if anyone else has "odd" medical issues that Dr. "can't figure out" ? Example - I have the reverse of anemia and no doctor has ever been able to figure out why.   So I just treat it myself.

I occasionally faint - but there is no medical explanation for it. I had seizures when I hit my head as a child, but after I was admitted to the hospital and put on phenobarbital, a year later the hospital apparently said I "No longer had epilepsy" but I still have had seizures randomly (from fainting and hitting my head) on and off over the years.

The current debilitating issue for me is chronic nausea. It's now been going on for almost 2 years, and I take zofran multiple times a day.   I also have had on and off IBS since childhood.   I am exhausted going to doctors - and my T yesterday (who also does nutritional wellness and muscle testing etc) said she thought these issues that "no doctor can figure out" were highly related to my CPTSD which I also agree with, but this is the first time I've been in a forum / place with other people who may feel the same.   My endocrine system collapsed 10 years ago due to the fight or flight etc and I was able to get myself better without doctor s and learning how to read my bloodwork etc. 

But this nausea is a killer. Thanks anyone else for your thoughts! Sorry if I rambled

[Dee]

I have IBS and take zofran as well.  I think my nausea is a type of flashback.  I have accepted there is pain and issues that are psychological.  I am often afraid to go to the doctor for things because I don't know if they are real or not.  Then I worry that one day I am going to ignore something that is big.  I ignore chest pain assuming it is a panic attack.  I then worry what if it is a heart attack and I'm ignoring it.  Needless to say it makes it much worse.

The nausea is the worse issue I have.  It is horrible to feel sick all the time.

[Blueberry]

  I am often afraid to go to the doctor for things because I don't know if they are real or not. 

It's like that for me a bit too, except that I usually do go now because my doc knows me well and never ridicules me or tells me I'm wasting his time. If he thinks it could be a problem which should be checked, then he does refer me to a specialist. But I genuinely often don't know if I'm sick or not. Should I work? Or not? Should I go on holiday as planned? Or not? Am I really sick or is this just psychosomatic?

It used to be worse, I would just keep on regardless, so go hiking for hours with a high temperature. 

Now I've switched reaction mode and tend to automatically assume at the slightest thing that it's cancer of whatever type. My doc has to reassure me quite often that there's no reason for the fear. And no, no FOO member died of cancer when I was a child. There's no obvious reason for this fear.

For years, beginning in my childhood, my forbidden and therefore suppressed emotions appeared as physical pain and weakness. So there was often no reason doctors could find for this or that. It's no longer like that. The more I've listened to my emotions and begun to act on them eg. by setting limits, the less my soul has to speak to me via my body.

[Dee]

Right...I never know when I am sick.  I use to sit at my desk and wonder until I physically got sick.  I spent so many days at work just feeling horrible when I should of been home in bed.  The worse ones are when I went to work really sick and then had trouble getting home.  I just don't know when to trust it is my body and not my mind.  I also just don't trust my body I suppose I never learned to.

[jennyjenny]

I have never met anyone else that's been through this - not knowing when you are sick, not knowing how you feel when a doctor asks you what's wrong (I used to NEVER know I was sick or feeling hurt).

It was only after I had an entire endocrine system crash (due to hyperadrenalization and excessive fight or flight) and had gained 60 lbs (I'd never been overweight in my life) between 32-35 years old ( I had previously been addicted to vicodin for 2 years due to awful IBS -D symptoms and stomach pains).  I also had been put on Risperdal for a few months (due to an incorrect BPD diagnosis, later changed to CPTSD), which I also  believed help kick my endocrine system into collapse. I learned SO Much about health and now I am actually VERY aware of when I don't feel good. But I had to go through about 3 years of being unable to walk (Fibromyalgia, CFS, hypothyroidism, Ovarian dysfunction (hormones out of balance), and about 5 other scary sounding things). I was actually able to heal myself, no longer take tons of psych. meds and instead I take vitamins,  and no longer have Fibromyalgia or Chronic Fatigue and now I do brazilian jiu jitsu 5 days a week !

I had forgotten all about not knowing when I felt sick etc.

Side note - the nausea is AWFUL.

[Blueberry]

Nausea is awful and I'm sorry if it's constant. That must be really hard to live with.
Yay you  for curing yourself of the rest like not being able to walk. That's really impressive - healing yourself!

[jennyjenny]

Thank you Blueberry!

[basically0kkim]

This topic caught my eye because I had a similar experience. I'd been "self-healing" for quite some time. Symtoms of psoriasis, arthritis, depression, anxiety, CPTSD, addiction and vertigo. I joined a twelve step program in 1998 and did some alternative therapies for pain.  My symptoms (widespread joint pain, weepiness, nausea, headaches, sleep disturbance) would always flair when I was experiencing fight/flight urges and I finally sought treatment for the arthritis in 2011 after a panic attack I was sure was a heart attack. Only four years later I suffered a sudden rash of "mystery symptoms" (severe fatigue, chronic diarrhea, headaches, dizziness, tinnitus, hearing loss and cognitive issues) and ran through several doctors and numerous tests and ended up back in the hospital in late 2016 with sinus bradycardia. FINALLY the right test was done and I was diagnosed with Hashimoto's Thyroiditis. Throughout all of this what I found out was that I'm a lousy doctor and that I have a tendency to only mask my symptoms which allows their root cause to run rampant. For me fear is the enemy and hope is the solution. I'm glad I didn't settle for the tired old "somatic symptoms" cop-out. I'm treating ALL of my conditions now with competent professionals and if I find one I cannot trust, I find a replacement. I'm even beginning to believe I'm worth it. I hope this helps.