I'm sorry asdis, all that is really tough.
It took me years of trying to get someone to believe me that something was going on and it wasn't all in my head, trying to manage it on my own. Sometimes that's what you have to do and it is in way, like reliving my trauma again ie being in the hospital with my m because I couldn't breathe at age 5, questioning if I really needed to be there because she had to get up and go to work the next morning. Did she stop smoking or consider it when the doctors told her it was a problem for me? Definitely not.
So, I read a lot and tried a ton of different things, trying to get some answers from doctors over the years. What I found that worked for me, was making some changes ie cutting out gluten when I thought my symptoms were related to Hashimoto's Thyroiditis. I cut it out for three weeks and had a reaction (acute joint pain) about 20 minutes after I ate it. That signalled to me that something was up. So, I stuck with it. However, all my symptoms didn't go away, but I could see a very real cause and effect from that. I asked the doctors to genetically test me for celiac and they did, but it was neagative. They had no further answers. The inflammation took a long time to go away and clear from my system, but it did until I moved and was exposed to mold again and then proceeded another round of trying to find out what was going on. I miss eating sourdough bread, but to me, the benefits of not feeling sick that I could distinctly feel, outweighed the foods that I could no longer eat.
I will also say that my symptoms were not just on a physical level, eating gluten also did something to my mood and cognitive function. I would feel like I "hated the world," and would feel quite mentally dark as well as lacking the ability to focus. So, this stuff is tricky because the symptoms aren't always solely physical. I know someone who tried the autoimmune paleo diet after I suggested it to her, and it made an incredible improvement (so much so that she was thinking about selling her car because it was so painful to shift at the end of a working day, to not having that problem), but the diet is/was so difficult, and she was having to meal prep on top of working 14 hour days that she didn't know how to keep up. Of course if you're having issues with oxalates and/or salicytes as well, it can compound the foods that you can't eat. But over time, these little steps help to calm your body down a bit to take the next step.
The other thing I found that helped me was to find online communities of people who had the things I thought I did and learn for them. It helped me find out what are the correct diagnostic tests that doctors should be running, so there wasn't your test results are fine and there's nothing wrong with you, as well as what are the functional levels that actually need to be on a good lab result (functional medicine was what helped me source the problem and it does suck because it costs an absolute fortune, but your insurance may cover it as I think some peoples' do). It was also good to hear stories about what did and didn''t work for people, but there are also dead ends too, and people chasing their own snake oil cures.
You are taking care of yourself in a way that your FOO didn't and that's great
Sending you support to take the next step.
It took me years of trying to get someone to believe me that something was going on and it wasn't all in my head, trying to manage it on my own. Sometimes that's what you have to do and it is in way, like reliving my trauma again ie being in the hospital with my m because I couldn't breathe at age 5, questioning if I really needed to be there because she had to get up and go to work the next morning. Did she stop smoking or consider it when the doctors told her it was a problem for me? Definitely not.
So, I read a lot and tried a ton of different things, trying to get some answers from doctors over the years. What I found that worked for me, was making some changes ie cutting out gluten when I thought my symptoms were related to Hashimoto's Thyroiditis. I cut it out for three weeks and had a reaction (acute joint pain) about 20 minutes after I ate it. That signalled to me that something was up. So, I stuck with it. However, all my symptoms didn't go away, but I could see a very real cause and effect from that. I asked the doctors to genetically test me for celiac and they did, but it was neagative. They had no further answers. The inflammation took a long time to go away and clear from my system, but it did until I moved and was exposed to mold again and then proceeded another round of trying to find out what was going on. I miss eating sourdough bread, but to me, the benefits of not feeling sick that I could distinctly feel, outweighed the foods that I could no longer eat.
I will also say that my symptoms were not just on a physical level, eating gluten also did something to my mood and cognitive function. I would feel like I "hated the world," and would feel quite mentally dark as well as lacking the ability to focus. So, this stuff is tricky because the symptoms aren't always solely physical. I know someone who tried the autoimmune paleo diet after I suggested it to her, and it made an incredible improvement (so much so that she was thinking about selling her car because it was so painful to shift at the end of a working day, to not having that problem), but the diet is/was so difficult, and she was having to meal prep on top of working 14 hour days that she didn't know how to keep up. Of course if you're having issues with oxalates and/or salicytes as well, it can compound the foods that you can't eat. But over time, these little steps help to calm your body down a bit to take the next step.
The other thing I found that helped me was to find online communities of people who had the things I thought I did and learn for them. It helped me find out what are the correct diagnostic tests that doctors should be running, so there wasn't your test results are fine and there's nothing wrong with you, as well as what are the functional levels that actually need to be on a good lab result (functional medicine was what helped me source the problem and it does suck because it costs an absolute fortune, but your insurance may cover it as I think some peoples' do). It was also good to hear stories about what did and didn''t work for people, but there are also dead ends too, and people chasing their own snake oil cures.
You are taking care of yourself in a way that your FOO didn't and that's great
Sending you support to take the next step.