Miscellaneous ramblings of NarcKiddo

[dollyvee]

Hey NK,

I'm happy you have found the potential root of your lung issue and sorry that the solutions are less than ideal.

If it's any use, I'm on monteleukast at the moment, a mast cell inhibitor, that also comes with a black box warning. I didn't have any effects for about a year, and then noticed when I came off of it for a few days, I had some severe irritability that was difficult to suppress. So, could be good, bad, or good for a while. I need to go back to the FMP and see what is causing the still elevated mast cell issue and if anything can be done about it.

Sending you support,
dolly

[NarcKiddo]

If it's any use, I'm on monteleukast at the moment, a mast cell inhibitor, that also comes with a black box warning.

That is the drug we are considering. Thanks, Dolly.

[sanmagic7]

NK, while i'mn glad the docs have found the reason for your problems, i'm sick in my heart at what they found, and especially since the effects of the possible meds can be so dire.  i just hope they work for you and you feel better, more yourself.  fingers crossed and prayers flyin'!

i know some people have a note in their medical charts that mentions 'medical trauma', and i don't know that there's any particulars attached to that, but several have noted that it makes a difference.  so, maybe that's an option.

in the meantime, i hope it turns out for the best for you.  love and hugs, my dear