UK research project

[Saluki]

I am interested in participating in the research project highlighted in red at the top of the board but when I click on the link it takes me to an error message - the same happens for the other link. Not sure why?

[Kizzie]

I'm not sure why that's happening Saluki as they're fine when I click on them    Anyway, if you click on "Announcements" you'll see a thread about the UK project.  Just in case you have trouble finding it here's what the post talks about:

A PhD student, Dawn Davis from Glasgow Caledonian University is looking for volunteers to participate in a study about Complex Trauma survivors' experiences with healthcare. "The aim of the study is to explore what those who identify with having Complex PTSD want health professionals to know about their experience."

As you know this is an important topic we talk quite a bit about here at OOTS because CPTSD is still not well known in healthcare yet. The more information we have about what is missing from and what is working in healthcare, the better off we will all be.

Dawn is hoping to get enough volunteers for 2 Zoom groups of 4 or 5 people. The dates/times planned for the groups are the 12th of June @ 10:30am PST/1:30pm EST and the 13th of June @ 10:30am PST/1:30pm EST so you'll need to get in touch with her ASAP. Her email is ddavis301@caledonian.ac.uk.

Tks for participating in it, I know the researcher Dawn Davis will be happy to have you volunteer!

Kizzie

[Saluki]

Thanks Kizzie. Oops, I've been so preoccupied with stuff I missed the deadline but thank you for posting. Just realised it's probably my old phone playing up.

[Kizzie]

No worries     

[Blueberry]

Saluki, I took part in the study, was in one of the Zoom groups. What was talked about is confidential but it definitely felt good to have somebody training as a counsellor or therapist interested enough to do a study on this topic and give us a voice.

[Little2Nothing]

I took part in one of the zoom groups as well and yes it was encouraging to have someone interesting in trauma. I thought the session I was in was very productive. 

[Kizzie]

I'm so glad you participated L2N and BB      The more we share the more people/professionals will know about Complex Relational Trauma and CPTSD and the more treatment, services and support we will receive. 

Saluki - There will be another study coming up in July or Aug (depends on when the Ethics board for the university approves it) and it will involve both group and one-to-one video interviews so perhaps keep that in mind.  It will be announced here on the top of the forum page like to the last one.

[Saluki]

Thanks Kizzie. I'll keep an eye open for it if I've not already missed it.
It sounds like it was really productive.

[Blueberry]

Saluki - There will be another study coming up in July or Aug (depends on when the Ethics board for the university approves it) and it will involve both group and one-to-one video interviews so perhaps keep that in mind.  It will be announced here on the top of the forum page like to the last one.

Do you mean the Canadian one, Kizzie? Or is there another one coming up?
For the Canadian one, you have to be resident. Canadian citizens abroad don't count.

[Kizzie]

No BB, there's another study coming and it's tied to the project I'm heading up about survivors' experiences with healthcare and the gaps (e.g., difficulty finding T's, less than adequate trauma informed care). It's still in for ethics approval but as soon as it's granted off we'll go. And it's not just for Canadians as I'm looking for experiences with healthcare everywhere since it seems no country has gotten it quite right yet.

 

[Blueberry]

Oh yes, thanks Kizzie, I kind of remember now

[Saluki]

The UK is really struggling with providing trauma therapy at all. It's been an absolute nightmare for me, and I've spoken to others who share similar experiences. I've now been waiting for 12 1hr weekly sessions with a charity (not NHS but recommended by NHS, who said they'd refer me but didn't) when I asked for (and was recommended in multiple assessments) specialist trauma therapy, long term regular support and some counselling in the meantime whilst on the waiting list for EDMR or similar.
The NHS is broken is my final conclusion.

[Kizzie]

Yes Saluki, that's what we're trying to get at with the project; that is, we are basically languishing out here on our own for the most part because there simply aren't enough trained professionals to help us, and it's a really serious medical and mental health issue that's being neglected.

Hopefully adding our voices to the mix to let professionals know this will speed things up in terms of education and training.   

[Saluki]

Thank you. That's awesome. I'm also interested in finding out how common it is for people with CPTSD to be given a misdiagnosis of autism. Of course autistic people can help CPTSD too, but the number of people I have met who have been diagnosed solely with autism and have also described serious traumatic events from their past got me thinking, well, it wouldn't surprise me if the healthcare professionals involved weren't trauma informed and read the symptoms as autism, as they do overlap a lot. And of course, the conditions will have different ways altogether of being managed/treated.