Thank you so much for your understanding.
Did they say you didn't have enough tender points or something? I've been reading a lot of books on Fibro and some of them argue that the tender point exam isn't always fair bc part of the issue is that pain is unpredictable and migrates within the body so possibly someone with it but maybe not as severe might not register enough tender points but still have it. What did they say was causing your symptoms then?
I'm glad you didn't have FM - though it must be equally frustrating to have so many of its symptoms but once again end up with no answers. When I did get the diagnosis, part of me felt relieved that my pain was being validated with a name...
That being said, the name seems to be a blessing and a curse bc now the name seems to be a catch all to dismiss providing help. It's deemed as incurable and so.. yup.. you have FM... so you'll just have to make life adjustments to manage the pain as best you can and here are some meds but they don't actually help...
my neurologist has been trying to help me with the migraines and FM but now even she is saying maybe it's just stress... (which I'm not denying - I get that my psychology wreaks havoc on my body... but please still help me! I see a psychiatrist, I go to counseling, I take psych meds, I've essentially stopped working... I'm doing everything I know how to do to manage my stress... so telling me it's stress doesn't tell me what to do about that

)
Oh well, I'm seeing my rheumatologist on Tuesday and hopefully she'll be able to offer something more? If not I just don't even know... I'm in so much constant pain and so fatigued... how can this be the rest of my life?

Anyway - I'll take your advice and try and revive the thread every once and awhile to see if anyone new joins that might have this... or possibly has it undiagnosed?
Thanks again!